Two million, one-hundred-three thousand, eight hundred, forty minutes. That is how long it has been that I have known about gliomatosis cerebri, the beast that ended my son’s earthly existence but can NEVER end his spirit. On this day four years ago I was taking TJ to the ER with my sister at my side. About five hours into our…
Most people who have experienced the loss of someone close to them could probably tell you the signs that a departed loved one is near- the ones “they” tell you about. “They” are the folks who are in tune with this other dimension where our parents, children, siblings, and friends now exist. I know some will roll their eyes but…
August 9th. Today. Thirty-one months have marched by since TJ left this plane. Marched? Crawled? Eeked? Which word is the best? “Eek” sounds right since that gives me a sense of just barely getting by, like me most days. “Crawled” sounds good since the days without him are long. “Marched” seems right too though, because marching feels harsh to me…
Where do I start today? I don’t really know. I’m very emotional today. It is the anniversary of the death of a good friend’s son who also had gliomatosis. I grieve for my friend. It is this friend and this son whose story I found nearly four years ago in my online quest for any information on gliomatosis. Her son…